November 16, 2009

Research Opportunity

Posted in Uncategorized at 11:59 pm by serenamuse

I just received this e-mail from the Whitmore Peterson Institute in Nevada. They are the ones that just linked Chronic Fatigue Syndrome to a virus. I think it would be helpful for all of us to submit our information for possible study. It is only a matter of time before they start connecting CFS to Parvo. Here is the link. You can fill it out online.

The Whittemore Peterson Institute is pleased to announce that the research questionnaire is now available online.  Please visit http://www.wpinstitute.org/patient/volunteer_form.html to fill out the form and submit it.  All information you provide is personal and confidential.

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November 12, 2009

November

Posted in Uncategorized at 2:51 am by serenamuse

Yes, I am still here. Life has been very stressful and I am feeling overwhelmed right now. I won’t go into details. I do appreciate the comments that you leave to each other. That is what the site is for.

I will say that part of my thesis project has to do with trying to communicate how we feel about chronic illness. I am trying to do a series of paintings, each tackling a moment in our journey. Perhaps you can help me by answering one question. How do you feel about your illness right now, today? For myself I have angry days, I have frightened days, I have days where I am resigned to it. I have hopeful days and guilty days. How about you? How do you feel about your illness today? Perhaps I can figure out a way to depict that.

My best wishes go out to all of you. I know for myself this is a difficult time of year. I love fall, but it does not love me. I am still doing far better than I have before, but I am feeling it. I am needing those naps. Funny thing. I had two small fillings replaced last week and my mouth is still so sensitive. I really think this is the Parvo. It seems that any sort of pain lasts longer and that I am just more in tune to it. Drat.

Happy Autumn!