December 28, 2011

The next step for Parvo online data gathering and dispensing…

Posted in Uncategorized at 10:51 pm by serenamuse

Hello all. I’d like to wish you all a very Happy New Year – and a healthy one. One of our readers has been doing a lot of research and has pointed out a website to me, that might be of interest to all of you. Here is the link http://forums.phoenixrising.me/content.php?525-Ottawa-Conference-Reports-III-The-Most-Expensive-Disorder-Clauw-on-the-Fibromyalgia-and-CFS-ness-of-Chronic-Illness This is a well organized website that strives to give the latest information on CFS/ME and Fibromyalgia. First off, I am not convinced that we as people diagnosed with Parvo B 19 are to be considered separate from CFS. (here is an article of interest http://www.prohealth.com/library/showarticle.cfm?libid=9473)┬áSo many of our symptoms are the same. I tend to think that we are fortunate that we can pin point a direct cause or at least a correlation to our symptoms, however, that is not to say that CFS is not the result of other viruses. I tend to think the Parvo virus was a trigger, but that other factors were in line for us to get the “chronic” condition. Anyhow, there is some very interesting information on this site that might be of interest to you. This however is not my sole reason for having you look at the site. My question is, what can we as a Parvo Community do to facilitate more effective information gathering? Yes, we can figure out how to put together a fancier website, but I feel we need to have the involvement of some medical professionals. Do any of you have ideas and the means to help pull something together? I am not a web designer, nor have I found any doctors that are committed to our cause. If any of you have ideas or means to help put something together I am open to hearing them. I’d like this to be the most productive forum possible. I also wonder if perhaps we should try to connect with a forum like the one I have posted, as I do feel we are not so far removed from CFS as we might think…What are your thoughts?

Best,

Serena

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