February 20, 2014

A new year

Posted in Uncategorized at 4:51 pm by serenamuse

Have any of you found that you have recurring UTI’s that never seem to grow bacteria on the culture? Do the doctors just make excuses, saying things like, well, the culture may have been contaminated, or we lost the sample, or maybe it is just too early for it to grow, you are just really sensitive to the pain? Do they just throw antibiotics at you, often needing a second round? Do the symptoms improve only to come back at a later date? Well, this has been me for the past ten years. I finally have a new GP who said, you are not having UTIs. I think this is CBP (chronic bladder pain) and sent me to a urologist. I had never heard of it, also known as interstitial cystitis. http://www.mayoclinic.org/diseases-conditions/interstitial-cystitis/basics/definition/con-20022439 It is common among women who have other chronic pain issues, like fibromyagia, CFS, Parvo, though men can get it as well. The latest research suggests that it is not an isolated condition but just one more system in your body being attacked by whatever is causing your other pain issues. This makes sense to me as I had an infectious disease doc tell me years ago that the Parvo will affect every system in your body. Of course, there is no one way to treat it, and there is no cure. The first thing they have you do is go on a very restrictive diet until the flare up is over. I’m trying this now and believe me as a vegan I didn’t think I could restrict any more. I was wrong! Nothing to drink but water. Eliminating all

  • Alcohol
  • Artificial sweeteners (aspartame and saccharin)
  • Coffee
  • Citrus juices
  • Cranberry juice
  • Hot peppers
  • Soda
  • Spicy foods

but that is just the start. No fruit except blueberries and pears. No chocolate or chocolate flavored anything. No tomatoes. No nuts, except cashews and almonds. No vinegar, soy sauce or tofu. No bread that has rye or sour dough, or preservatives or MSG. No onions. I am having to rethink my entire way of eating. I’ve lost two pounds in two days. Crossing fingers that it will work! In the mean time life and food are very bland!