As October wanes I find myself drawn to my bed like a magnet. There are days when I hardly feel human, more like my cat who accompanies me there. This condition of mine was caused by a “harmless” little virus called the Parvo B 19. My daughter brought it home from nursery school six years ago. Unfortunately I was one of the lucky few adults to contract the full force of the virus resulting in permanent damage to my entire system. For some reason the virus likes to recharge at the change of seasons, though this fall is particularly worse than last.
I am a 39 year old artist, mother of two and wife. The purpose of this blog Is to provide a forum for chronic parvo sufferers – to educate one another on what has worked for you, what has not, how to find doctors that are knowledgeable, to share links to research on the web.
I am a member of the mirandamission blog, but have found that it was more of a site where everyone went on and on about their symptoms and never accomplished anything – as far as finding help. I am seeking results. I am tired of commiserating all the time. That does not mean we can’t be a support to one another, but I really want this to be an educational site. Let us help each other in our quest for relief from the symptoms of parvo.
Initially I began with a rash on the backs of my hands. The next day my joints were swollen and painful. The swelling and joint issues spread to my knees and other joints. I was tested for everything under the sun, finally they narrowed it down to one thing, the Parvo B19 virus. My story is usual, it did not clear up in a few weeks, or months. I did have a remission of about a year after the first year, then after a very stressful move the rash returned – on my face and neck this time, the arthralgias, fatigue, muscle aches and brain deadness, followed. I’ve been dealing with various levels of the virus for six years.
What medications have helped you? I found cymbalta 60mg to be very good and reliveing the arthragias and brain fog, for about a year, but then started to wear off. I am currently cutting back on that – half dose, in hope of trying something else.
The only Doctor I have found who really understands Parvo is an infectious disease specialist. Unfortunately we moved and now I am searching all over again. I currently have referrals out to Loma Linda Medical Center and UCLA. The only thing I have found mentioned in the research on line – as far as a near cure is the IVIG treatments. That is my goal. To find someone who can offer this to me.
Have any of you had IVIG? What were the results?
Okay, this is the start. I hope this can be a productive site for all of us who suffer from this lousy disease.